Chislehurst family of Christmas day baby appeal for support for Demelza
PUBLISHED: 10:26 14 November 2016 | UPDATED: 10:26 14 November 2016
The Anderson family are fronting the campaign because children’s hospice, Demelza continue to support them
The family of a child born on Christmas day are fronting an appeal to raise funds for the children’s hospice, Demelza, which helped them.
When Kate Anderson, from Chislehurst, went into labour with her first child on Christmas day in 2014 excitement turned to fear.
Ms Anderson said: “He wouldn’t feed and he had concerning eye movements which we later found out were seizures.”
When doctors found the right medication to control Harry’s seizures, Ms Anderson and her husband, Duncan, were able to take him home.
Demelza SEL in Eltham was suggested to the family as somewhere which could help them get to grips with medications and feeds.
“The care team helped to build our confidence by showing us how to give medications and feeds,” commented Ms Anderson. “If we’d gone straight home we would’ve found it harder to cope.”
Harry was diagnosed with SCN2a Encephalopathy – a rare mistake in a gene which causes disease of the brain.
Ms Anderson said: “There’s no cure, he will never walk and probably never talk. He can’t grab or play but he can smile and laugh which is a blessing.
“His beautiful smile is something which is always on show when he is at Demelza. We still stay regularly so we can recharge our batteries and Harry loves to be taken out on trips with the other children. When we’re not at Demelza I know support is at the end of the phone whenever I need it.
“Our Christmas Day is now known as Harrymas Day. Last year was a birthday and a Christmas we never thought he would have together.”
Ms Anderson is urging people to support Demelza: “Any gift you can give will ensure Demelza can continue to care for families like ours, not just Christmas day, but 365 days a year.”